BMT Day 56: Surprisingly Long Hospital Visit.
Friday July 10th 2015, 9:50 pm
Filed under: Family, Friends, Leukemia

I’m going to keep this short because I am in a lot of pain.

Today, my mom and I went to the outpatient BIC for six hours. Both simply being there and the longevity of just how many hours we ended up being there were pretty big surprises.

Last night, I did not sleep well, and when I finally woke up, the right side of my neck was swollen and my lymph nodes hurt terribly. Same thing as before: it hurts to turn my head in either direction, it hurts to chew, and it hurts to yawn. I also have a little lymph node on the left side of neck, under my chin.

I went for an ultrasound, which revealed that my lymph nodes are simply inflamed, they’re not causing any occlusion or clotting problems. In fact, the clot that had been forming two weeks ago seems to be gone, which is great. But I’m in so much pain from my lymph nodes and no one’s really A) found a good way to make it feel better, or B) figured out why I keep having this infection. I’m going on ten days of antibiotics to hopefully get my lymph nodes cleared out. It worked before!

Even though that clot is gone, I need to stay on the anticoagulant, Lovenox, for three months. Those shots really hurt, no matter if a 10+ year veteran nurse gives them or my parents do. Even stranger, they measured a chemical inside my body that changes based on whether I’m taking the right amount of Lovenox, which is based on weight. The NP said my number is too high, whereas she normally sees numbers too low. She got in touch with a hematologist (blood doctor) and we got a call back from another NP this evening that the hematologist had said to leave the Lovenox at the same level, which could lead me to be a bleeding risk.

I’m guessing they will change soon my level on this soon or explain why it’s not as big of a deal as it was made out to be.

Luckily, it doesn’t seem like any of this has to do with BMT.

Jeff Reiman and Joyce Rubin came over tonight for what seems for our ongoing tradition of having Chinese food together for dinner every couple of weeks. I always look forward to seeing them and have a great time when I do! They’re very supportive, and we always have interesting things to talk about.

Going to try to go get comfortable,

Goodnight,
–Reid.


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Sorry to hear that the BIC took longer and was less informative on what should be done about the Lovanox levels than one would hope. Here’s hoping the antibiotics are effective and that you can get some pain relief. It’s great news however, that the blood clot is no longer there!

Comment by Krista Harris 07.10.15 @ 10:14 pm



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