Longish Day Ahead, Getting Chemo
Friday December 28th 2007, 3:05 pm
Filed under: Leukemia

I’m feeling good! I walked around a lot today, took my first shower in weeks without feeling like I was going to pass out, and played some Wii with my dad. We’re both terrible at it, and it was a blast.

My legs are still massively swollen, and now so is my right arm. I look like Popeye on one side. It’s gross. This is almost certainly caused by the steroids (oh, the steroids). I’m getting two bags of hemoglobin today, which will hopefully move the fluids and oxygen to other parts of my body, but there’s a (high) chance this is just another thing that’s going to keep getting worse during the first month due to the prednisone. Everything else might get swollen too!

My bilirubin has come down low enough to get the full dose of one of the chemo drugs today and a half dose of the other.

They’re also going to do an ultrasound just to check on my swollen arm to make sure there’s not a blood clot since it is on the same side as my mediport. Not sure if I’ve written about the mediport here before, but it’s a little two-port reservoir that was installed in my chest that connects to some major veins that they connect IVs into so they always have a good blood line. It’s where I get my chemo and other drugs, and where they draw blood from. So it’s important to make sure it’s working okay.

I have another port in my brain so I don’t need to get spinal taps, too.

My fingers are very tingly these days and my hands are shaky, and now on top of it all, my right arm is really swollen, so it’s getting harder to write and type. Sort of annoying!

Grandma is bringing me Taco Bell! Their website is incredibly specific about nutrition information. Not that it’s the healthiest thing I can be eating right now, but when I need to say exactly what I’m eating, it has been by far the most impressive, comprehensive restaurant we’ve had in the past few weeks. Red Robin and Cheesecake Factory won’t tell you any of their info!

I’m supposedly going home tonight.


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We’ve been keeping up with your happenings and think of you constantly. Big hugs to you and your family! Balderdash when you are ready!

Steve and Marci

FYI – Panda Express, Sonic, Arby’s, Pizza Hut, Wendy’s and Noodles & Company have the very best nutritional guides that I have seen. This I know!

Comment by Marci 12.28.07 @ 6:34 pm

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